TARGETING SAME SEX ORIENTED PERSONS AS A STRATEGY TO REDUCE NEW STDs/STIs/HIV INFECTIONS IN UGANDA: BY THE NATIONAL STD UNIT’S MOST AT RISK POPULATION INITIATIVE; USING PEER TO PEER (Social/Sexual) NETWORKS TO RAISE AWARENESS ON STDs/STIs/HIV FROM JANUARY TO JULY 2009
KEY WORDS:
IGA: Income Generating Activities
KABPPS: knowledge, attitudes, behaviour, perceptions,
practices, sexual behaviour.
LGBTI: lesbian, gay, transgender and intersex
MARPI: most at risk populations’ Initiative
MJAP: Makerere/Mbarara Teaching Hospitals’ Joint AIDS
Programme
MSM: men who have sex with men
SWOT: Strength, weakness, opportunities, threats
STD: sexually transmitted diseases
TG: Transgender
INTRODUCTION:
The
same sex oriented community is perceived to be trapped in decadence, immorality
and promiscuousness. Mention this community and what immediately comes to mind
is involvement in a form of sexual intercourse that is abominable. Almost all
social interventions that target same sex community, base on presumption of
recklessness, decadence, promiscuity and the wrong form of sex (Homonormative
relations). This is not helped by fact that the statistical majority of
Ugandans are heteronormative, same sex marriage is illegal (Article 31, clause
2a) and a small but significant population is engaged in homonormative
relations. HIV-related services in Uganda address effects of unprotected
vaginal sex, mother to child, infected blood and psycho-social needs of
infected and affected persons who are in a formal setting (hetero-normative).
The homonormative-driven mode of infection is criminalised. Studies in sex work
activities and social issues highlight existence of anal sex and same sex
relations (e.g., MoH/UNFPA Sex work study 2009). But data on same sex
characteristics are scanty. It is through understanding same sex orientation in
Uganda that a further blow will be dealt against STDs/STIs/HIV. The National
objective and Directive principle of state policy in the constitution of the
Republic of Uganda number XX provides that the State shall take all practical
measures to ensure the provision of basic medical services to the population.
In providing medical services the National STD unit pursues this directive
diligently and seeks to reach out to all categories of people without
discrimination (RIGHTS BASED APPROACHES). This paradigm shift further shows
commitment to the fundamental principle of equity of access to effective
quality health care. It does this through two settings. The facility based
(where beneficiaries walk-in) and outreach services or community based health
approach (where phased programmes addressing categories of people are
implemented through planned activities by going out to these communities). Outreach
programmes are under the MARPs Initiative. MARPs in full is Most-at-risk
populations (Sex workers, Long distance truckers, Communities around parking
yards, same oriented persons, Couples, School going community, communities
around entertainment centers, non-Ugandans in slum areas, slum dwellers,
Uniformed folks, in-mates, substance/drug users, IDUs, partners in abusive
relations, fisher folks and men). All these categories have specific planned programmes
targeting them. That providing for same sex community started the first
outreach in January 2009. Other activities the initiative provides are; IEC
materials on STDs and training peer leaders who continue reaching out to the
sex-workers, uniformed folks, discordant couples, school-going communities and
non-school going communities, fisher folk, IDPs, IDUs, Youths and persons in
long term relations.
National
STD Unit’s Most-at-risk-population Initiative (MARPI) is an indigenous
government of Uganda NGO that is promoting reduction of STDs/STIs/HIV/AIDS
among same sex oriented persons with unconditional positive regard. Services
offered range from quality counselling, guidance, screening for all STDs/STIs
including skin infections, HPV and HIV. It offers treatment for all ailments
and it is part of the various wards that make up the National referral Hospital
of Uganda.
The
words MSM/WSW/TGs, homosexual, same sex oriented persons, MSM/Sexual
minorities, same sex and lesbian, gay, transgender and bisexual are used
interchangeably and mean the same thing. But, for purposes of formality same
sex oriented persons is preferred.
Anal
sex and same sex marriage is criminalised in Uganda (Penal Code 131, 134, 136,
145, 146, 147, 148). This has created a whole structure and stratification of
criminalisation which is not helped by the deep set homophobia and a
patriarchal male-domination system. This in turn has defined sexuality,
cultural, economical, and social and gender expressions. It has created a
gender spectrum of submissive recipient-providers and dominant
assertive-demanders.
OBJECTIVES:
GENERATE
AN INVENTORY OF SEXUAL AND SOCIAL NETWORKS/ISSUES IN SAME SEX COMMUNITIES TO
GUIDE POLICY AND;
- To establish existence of same sex
orientation persons, sexual and social networks in Uganda.
- To understand the kind of persons,
fears, insecurities, incompetence, competences, sexual choices, life
choices, vulnerabilities, effects of coming out, effects of visibility,
reproductive health issues, sexuality awareness, rights and HIV/AIDS/STIs/STDs
status within same sex Community.
- To establish organisation levels among
same sex community and how this can be platforms promoting positive sexual
behaviour, improving documentation skills, generating programmatic activities
that can cascade into national plans, offer life skills, esteem building
and reduction of STDs/STIs/HIV and skin infections.
- To gauge size, understand
characteristics, risks, typology needs, experiences and services specific
for same sex oriented persons. Same sex marriage and anal sex are illegal
this has driven these communities underground. Because of this, there is
no representative sampling frame for same sex oriented people in Uganda. A
quasi-sample frame however can be developed.
- To show best practices such as; forming viable groups,
providing platforms with themes that generate feelings of belongingness,
provide HIV information, conduct screening and testing services, conduct
outreach and advocacy, create safe spaces, follow up activities at safe
spaces, providing IEC materials, providing preventive prophylactics and
documenting these activities and experiences in order to build community
and political support.
- To explore determinants of risk
behaviour, expression, accessing services, threats to personal life,
health, sense of worth, future prospective in form of education,
employment, respect that a same sex orientation poses and gender interests
arising from social and gender roles as defined in same sex community.
- Integrate LGBTI issues within the
service delivery of various service providers and a funding priority.
- To inform Ministry of Health policy on
need to shift from a sexist
to a holistic psycho-social-cultural
view towards same sex oriented persons.
- To show the extent these best practices
are providing literacy, psycho-social, legal, capacity for community
integration, upliftment, actualising the spirit of the National
Constitution Of Uganda, operationalising the National Strategic Plan
(2007/8-2011/12) and international plans of action e.g., Maputo Plan of
Action, DHR, Millennium Development Goals, UNGASS and WHO.
METHODOLOGY:
The
msm/sexual minorities programme (also called the same sex programme) is
providing comprehensive health care services for men who have sex with men,
women who have sex with women and Transgenders. It aims at creating and strengthening activities geared at self
esteem, dignity, development, disease prevention, integration in communities,
health seeking behaviour and compliance among LGBTI.
At the community entry stage, a needs
assessment is done with the help of at-least 5 identified leaders. This is what
directs future interactions. Initial activity involves identifying viable
communities, introductions to community leaders or where there has been prior
references done to identify the leaders, their needs and how to intervene. The leader
or mobiliser is chosen as first contact person with whom plans to reach out to
others are made. Once numbers of beneficiaries, venue (called a safe space) and
dates are established arrangements are made and a memorandum of understanding
is struck.
It is important to note that in all the safe
spaces we do not discriminate people who seek our services. Hetero-normative
and homo-normative people access them equally. However, the mobilisers standing
at a vantage point and identify for us those that are willing to come out and
declare to us their orientation. This number is combined with those who attend
prior sexuality awareness talks held for same sex persons in same areas. During
the implementation day also called the outreach day the following are provided;
opportunity for same sex persons to do mobilisation work in their areas, health
education on sexual reproductive health, counselling, VCT, STD Screening,
post-test counselling outreach services and providing results.
Other
attendant activities that are on-going once a community has been reached
include; making follow-up plans even after an activity has been completed to
promote continuity, documenting experiences, providing a hotline number on
which beneficiaries call anonymously, home-visits for bed ridden (HIV +ve and
other ailments), group counselling, treatment for minor ailments, facilitation
for organisations handling same sex communities and training opportunities for other
health providers in unconditional positive regard for same sex oriented
persons. We are also involved in on-going research work into sex work
activities (nature, characteristics, typology and services).
Working
hand in hand with established same sex formed group members and providing
resources or support where possible is a break through approach. Viable groups
formed as a result of continued interaction, support in form of facilitation in
rights, sexuality and planning areas and training are a durable solution for
the programme. These groups are then modelled after the rights and Health
Action Groups concept (adaptation/cross between the Open system Models/
Community Health Models) of MARPI. The idea is to involve MSM/WSW/TGs in
efforts to improve on their esteem, dignity, health and worth. While at the
same time enabling interventions reach out to as many beneficiaries as
possible.
FINDINGS/RESULTS:
There
are MSM/WSW/TGs in Uganda and it was not because of Western influence but they
have existed even in time immemorial. Those who practice anal sex, be they in
hetero-normative or homo-normative relations, are considered immoral. And
general perception of public is that same sex relations are decadent and only
exist because of permissiveness and anal sex.
Historical
same sex organisations were initiated along lines of advocacy modelled after
campaigning for freedom. They received money for these causes but due to
un-skilled management and poor organisation there was poor accountability and
personalising of groups. Some members selfishly used the money, spread
information of torture, abuses and evictions. They got funding to address these
issues but never shared information with other beneficiaries. This led to
dis-integration of organisations. Many organisations have failed to mobilise
and hold regular meetings with their members.
There
are 15 groups with 25-30 members each that show promise of being sustainable
and have so far provided insight into internal assessment using SWOT and
KABPPS. The groups are in Kabalagala, Katwe, Bwaise, 2 Universities, Wandegeya,
Kampala central, Kitemu, Luweero, Nakawa, Mukono, Namungoona, Jjinja and Mbale.
The members have expressed need to be trained in leadership skills,
decision-making/problem solving skills, provided with a revolving loan to boost
their incomes by investing in identified income generating activities. The
income generating activities are; a music and dance troupe for hire,
establishing a vocational center, establishing a restaurant to provide 100
meals a day, a secretarial bureau to cater for printing and typesetting needs
in a university, a food preparation/catering facility for hire, a dry washing
facility and a beauty center. It required US $ 25.000 as a start-up revolving
capital which would bring back dividends in 2 years. It is only with these
groups that a systematic follow up can be done effectively and cheaply.
There
are over 5.000 people who have accessed outreach services under the same sex
outreach programme. Of these 1.500 same sex oriented persons who are
identifying as MSM/WSW/TGs have been reached (from January-July 2009). 1.000
have identified and lived regularly a same sex oriented normative life for past
3 years (2006-2008). 1200 are not aware that unprotected anal sex is an exposure
risk to infections including HIV. 60 are HIV positive, 50 are confirmed
lesbians, 700 are TGs (with 596 male to females –MTF, 100 female to males-FTM
and 4 are intersexed), 100 are gay men and 150 are bisexual (100 females and 50
males). There are 100 (85 TGs, 10 lesbians and 05 gay men) who have engaged in
commercial sex work (buy and sell sex). Most TGs (500) are below 30 years and
are in schools ranging from tertiary institutes (18+), secondary (13-17years) down
to primary level (5-12 years). The youngest same sex oriented male attending
programme was 12 years and has regularly slept with men from age of 09 years.
Reported early sexual debut between persons of same sex is common. In this
period of study, 950 same sex oriented persons’ responses were to the
affirmative about experiences of having had their first sexual debut with a
person/s of the same sex (300 admitted to having had first anal sexual debut
and repeat experiences from primary through to tertiary and beyond, 650
admitted to having had first anal sexual debut at tertiary level). Most same
sex relations are thriving in low cost residences, slum areas, in schools,
hostels and high cost residential areas.
This
approach has identified only 60 HIV+ve LGBTI persons (30 gay males, 10 lesbians
and 20 TGs) who are all below 60 years and are in different stages of need.
Only 4 of these 60 are in regular, salaried pensionable professions. The rest
rely on irregular means of earning money which include hand-outs from friends
and commercial sex work. In the last three months only 20 earned monthly US $
20 (US $ 1 is equivalent to Ugshs. 2.000). This money was used to cater for
house rent, transport and livelihood (clothes, food, socialising and
remittances) needs. 10 are critically ill, with wasting syndrome chronic
weakness, chronic herpes simplex infection and have been bed-ridden for more
than 50% of the day during month of June. 10 are symptomatic, engage in minimal
activity, appear malnourished, have recurrent respiratory tract infections and
are bed-ridden for less than 50% of day for month of June. 40 are asymptomatic,
can afford one meal a day, but enjoy normal activity. 05 have manifested
Stevens - Johnson syndrome due to co-trimoxazole.
Many
more HIV +ve LGBTI are still not reached because they are out of Kampala, are
scared of disclosure, are not part of the sexual and social network that we are
using and some are already benefiting from other services.
In 2
Kampala suburb low cost residential areas (Nakulabye and Kisenyi) are different
nationalities that mix with Ugandans. There are over 5.000 Horn of Africa and
other nationalities. Among these nationalities are same sex persons who need to
be reached out to. These areas in question comprise of; Somali, Ethiopian,
Eritreans, Congolese, Tanzanians. These are mixing with Ugandans. During 2 needs
assessment meetings with 6 leaders it was realised that Somali make up the
biggest numbers of non-Ugandans in these two residences. The Somali were
distinctly divided as Christians and Moslems. This more than anything else
formed basis of their perceptions about HIV/STDs/STIs. There are cases of STDs
and HIV cases which require interventions. A number of same sex relations are
existing between non-Ugandans and Ugandans.
In
most education institutes and communities, same sex sexual relations and
intercourse exist. Reasons given by sampled respondents about same sex
experiences are: experimenting, peer pressure, identity crisis and one’s
normativity. There is need to develop literature that explores reasons, gender
issues, normativity and explains same sex relations and intercourse.
Sexual
minorities Uganda, Makerere Law Refugee Center, Inter-AID, UNHCR, East/Horn
Human Rights Defenders’ Project, are various organisations besides MARPI that
have offered counselling, guidance and positive regard towards same sex persons
whether Ugandan or non-Ugandan.
A
differential diagnosis of 5 established gay, lesbian, transgender, intersex and
bisexual groups provides insights in organisation levels of same sex organisations.
Most organisations have an internet/virtual community with a membership of
almost 100-1.000 each. All have carried out activities in the past 6 months
consistently: advocacy for self determination by involving members in good
conduct campaigns and Rights awareness sessions; advocacy for self preservation
by mobilising members to engage in behaviour change for reduction of STDs, skin
infection, HIV-AIDS; they all have faced repercussions of recent sustained
spates of hate campaigns and outing by few members who were part of the
recent campaigns to eradicate same sex
relations and lifestyles. The vision is the same for all organisations: dignity
for all. However, they differ in their missions, objectives and membership
composition by virtue of sex, gender, needs and historical effects of women
movement campaigns. The lesbian organisations are highly funded than male-based
organisations. Lesbian organisations have more funds, compared to others, for
travel by members to conferences, safari expeditions, exchange programmes,
sports and rapid relief funds. There is poor grass root attachment in all
groups. This is because of deliberate lack of reporting of and accountability
for funds and omission to serve large numbers of same sex persons, visibility
effects, black-mail, extortion and outing as a result of misunderstandings that
frequently occur in these groups. In the past 6 months, 3 major break-aways or
animosity-driven threats occurred within the community. But, the power to
resolve conflicts is so well established and there is respect for authority.
An
umbrella organisation has been able to use safe spaces to provide support for
MSM through the amfAR fund and it has provided 5000mls of lubricants on top of
15.000mls sourced privately from elsewhere,
has provided promotional materials in form of stickers, T-shirts, MSM
info-cards, sponsored activities at 3 safe spaces for 60 LGBTI persons. This is
on top of activities by MARPI. This networking has provided opportunities for
more LGBTI persons to gain trust in MARPI activities.
2
organised groups by bisexuals have a very large contact base which has networks
using match-makers, the telephone and internet. It is still difficult to get
this community to form a viable physical group because of the fears that
visibility will cause to them, their jobs, their status, hetero-normative
families and friends. It therefore remains hard to provide interventions unless
more in-depth work, information for behaviour change, incentives that support
security and consumables are provided.
CHALLENGES:
The
health model in Uganda is a primary health care provision model with moralistic
underpinnings. In generating a diagnosis plan it relies mostly on presented
cases. These revelations may create un-friendly biases which are grounds for
reluctance for same sex communities to seek services. It is only in recent
times that due to practical public health models, aggregate communities have
had friendly specific interventions (Community Public Health/Right Based
Approaches). In Uganda, LGBTI community health interventions have been low key.
Most programmes assumed there was so much sexual intercourse among LGBTI
community and therefore the need for a classical screening, diagnosis and
treatment of STDs/STIs/HIV and primary health care services. However, there are
underlying psychological, social, economical and integration issues raised by
LGBTI community which if missed may point towards a wrong diagnosis. This
requires competent staff to handle this community followed by supplying
necessary provisions if this programme is to be effective.
There
is no formally existing programme on HIV among LGBTI people. Beyond providing
opportunities for HCT and Septrin prophylaxis, ART provision is not regularised
and there is no funded psychosocial programme to cater for other needs such as;
well-being kits, lubricants, dental dams, IEC materials, rapid relief services,
transport, membership-dues to positive clubs and involvement in
extra-curricular activities.
There
are more issues surrounding HIV and these include: fear of disclosure of HIV
status, unprotected sex among the LGBTI community, non-adherence, poor
psychosocial support and poor group dynamics among the LGBTI Community. This
increases cases of HIV infections, poses counselling challenges, and inadequate
LGBTI interventions against HIV.
The
LGBTI Community is mostly comprised of people not in formal and regularised
jobs (90% of those sampled). They earn very little or nothing and rely mostly
on hand-outs. This leaves them vulnerable. Because of this very many are still
not in position to negotiate for safer and protected sex. Those in
relationships are in multiple concurrent partner relations.
Money
committed to LGBTI interventions is little (US $ 100-500) to run 12 activities
a month targeting between 300-500 beneficiaries monthly and is influenced by
policy makers who have an in-grained moralistic-biased Model. Yet to do quality
services one has to use the integrated care approach where the following is
done; mobilisation, health education, VCT, Post test counselling, Condom
distribution, lubricant supplies, dental dams, follow up of HIV+ve LGBTI
persons, providing regular sexuality question and answer sessions, production
of IEC materials, networking with other LGBTI organisations, phone counselling,
integrated management of illnesses, development of treatment plans,
comprehensive HIV care, home -visits, group counselling, guiding in problem
solving and decision-making, providing refreshments, follow-up, documenting,
transport, airtime for communication, analysis of data, psycho-social support
which may include legal and evacuation incidences and processes specific to
LGBTI persons. This requires more time, professional and logistical input way
beyond the money provided.
Most
staff, especially the doctor are working overtime and volunteer more time to do
in-depth services provision (which require travelling, communications for
directions, facilitating in skills development and providing guidance). Whereas
this has provided insight into extent of lived sexuality in Uganda the wear,
tear, costs and burn-out is overwhelming.
Over
200 sparsely scattered same sex communities (10-40 members) in and outside of
Kampala exist according to gathered intelligence through interconnected
networks. The groups thrive from individual membership contributions and are
modelled after self-help support group methods. The nearest small community is
8 kms (5 miles) from the National STD unit. The farthest is 150 miles out of
Kampala. These communities spread information about services at MARPI. In the earlier days 45 communities were
reached but this number dwindled up to 25 but at least in the past 7 months, 15
have been consistently followed. Groups were served with the following;
providing group formation training, awareness sessions on STDs/STIs/HIV,
Positive prevention for HIV+ ve same sex persons, ART, Septrin prophylaxis,
positive living, Life-planning skills, sexuality/reproductive health education
sessions, esteem building, problem solving skills, decision making skills,
counselling and guidance sessions for needs that arise with time and Rights
awareness. More can be done by consolidating all efforts through empowering
formed groups to address lifestyles that reduce STDs/STIs and HIV/AIDS,
providing support mechanisms for those living with HIV and acting as platforms
for dialogue on life skills such as good conduct.
The
other network penetrated is that of Non-Ugandan same sex oriented persons.
These ones are divided further into; Western and Non-Western. They use phones
and internet as communication means through which they make negotiations, plans
and meeting at venues such as hotels, lodges, residences, recreational grounds,
green parks, resorts or any other arranged appointments. The persons include; foreign university
students, Ugandans living abroad with their friends, friends of non-Ugandans
and expatriate professionals. So far the National STD Unit team has reached
Non-Western but African non Ugandans. In reaching out to these communities there
is need to identify leaders among them who understand English so that
communication is good and peer networks explored. Something that takes longer
and requires more funds.
There
are biases and misconceptions that the African non-Ugandan persons have expressed
through quick appraisal exercises and these need to be investigated further
through a well funded study. This needs time and resources.
The
myths and biases of non –Ugandan (especially Somali) are;
- To know one’s status is to mean death.
- AIDS only gets Christians (said by
Moslem Somali).
- Only certain types of people get AIDS.
- If one is a good Moslem and prays 5
times a day that person will never get AIDS.
- It is health providers who infect people
with AIDS.
- HIV testing does not reveal one’s true
results.
- AIDS only gets Moslems (said by
Christian Somali).
The myths, attitudes and
fears of Ugandans;
- One cannot get STDs/AIDS by anal sex.
- Disclosing one’s status makes one a
community reject (fears of repercussions of multi-stigma).
- Male sex workers are highly paid.
- LGBTI lifestyle is a means to getting
money.
- LGBTI is a transitory life experience,
rite of passage and initiation rite.
- Anal/oral sex is not an exposure risk to
infections.
Needs assessment
highlighted a range of individual and contextual determinants that influence
sexual risk-taking among a sample of LGBTI. A large portion of LGBTI people
feel isolated and disconnected from others. Most therefore get into rash
relationships as a strategy. Many feel a sense of shame, lack of direction and
guilt about their sexual orientation. This makes them avoid formal settings;
they therefore seek guidance from older or experienced same sex persons which
fuels vulnerability. Many feel pressured to take risks because of negative peer
norms that exist in their social and sexual networks.
Making it clear
that it is an offence in Uganda to deliberately infect someone with HIV can
cause ripple effects for service providers who will be thought of as
condescending, it will drive many positive persons in relations underground and
many more will fear accessing ARTs.
Criminality in
the LGBTI community is visited upon the male sex in a societal context that is
homophobic, fuels rumours and falsely accuses persons suspected to engage in
same sex relations.
The LGBTI community
in seeking out relations is not careful about legal implications (Section 145,
Penal Code 1906 AND Section 129, Penal Code 2007) such as; engaging persons who
are below 18 years of age which is defilement, detaining with sexual intent
(maximum sentence is 7 years), engaging a person who is below 14 years is
conspiracy to defile and it is a felony whose minimum sentence is 3 years and
maximum sentence is death, sex when HIV+ve is penalised with maximum sentence
which is death, same applies to sex with a relative.
The origin of
the term ‘against order of nature’ still derives meaning from the Church
pronouncement of missionary style sex as being natural and what the Church
decides to be natural. This has influenced the thinking of policy makers
world-wide.
Same sex groups receiving funds are addressing
same issues and in a very limited catchment area. The needs assessment does not
involve a larger LGBTI community and few members know when funds that are
addressing their needs have been provided.
15 groups have
been followed up regularly; 7 are more organised (GALA, Spectrum, Farug,
Frank/Candy, Ice-breakers, Queer Youths and Integrity Spirituals) because they
have received funding and support regularly over the past two years. 8 have
been formed as a result of MARPI interventions. However, there were 25 which
were interfaced with but due to anonymous calls members kept getting as a
result of visibility with MARPI they broke ties.
Work among same
sex community requires co-activities that strengthen continuity through
follow-up. There are new forms of co-activities that are specific to the same
sex community and together make sustainable returns. These are however, not
budgeted for by the classical approaches of most proposals by policy makers who
are blind to homonormative community issues.
Same sex persons
report that most of their partners are engaged in transport, motor repair
garages, promotional/sales representatives and education sectors. These sectors
require specific IEC materials, time and schedules that suit a time when they
are not busy which is outside formal working hours.
SOLUTIONS /BEST PRACTICES:
Encourage
formation of groups under the Health Action Groups plan of Action (MARPI health
action groups). Formed groups under go needs assessment and generate
interventions addressing the needs. Then they implement planned activities.
These groups can also be used to engage in an income generating activity to
address issues of incomes among LGBTI Community and act as safe space for
HIV+ve LGBTI to mix with people who understand them. Through these groups,
contacts are made and vouchers with directions and phone contact numbers of
staff provided.
HIV/AIDS
services need funding and should follow these thematic areas even for LGBTI
community: Prevention interventions; care/treatment; psycho-social/economic
services; gender, sexuality and rights; belongingness; established phased
implementation/coordination and management systems that are participatory and
uplifting. Primary health services should include HIV testing, STI testing
and diagnosis, selected lab work, general physical examinations, PAP smears,
referral and follow-up and treatment literacy.
Safe
spaces are chosen as outreach provision centres nearer to homes of
beneficiaries to avoid long distances which minimises money refunded for
transport, refreshments and airtime allowance for making phone calls by
mobilisers. This has helped in effectively using provided funds. However, the
sustainable way would be to provide funds to groups in which identified members
are then trained in viable group formation and leadership skills. The groups
are provided with necessary resources to carry out self-assessment and address
interventions. All the above activities will require US $ 12.000 per month for
12 activities to provide effective and impacting services among LGBTI
community.
More
staff members have been trained in Unconditional Positive regard (a team of 11 serve
as; lab technologists, a medical doctor/counsellor, pre-test/Guidance
counsellor/site manager, Health educator and community based mobilisers/health
workers) this has helped in providing confidence support. The other programme
staff (entertainment centers, higher institutions of learning, sex workers and
couples) share information about different beneficiaries through referrals and
this way beneficiaries are provided with appropriate services.
Money
as incentives for mobilisers, buying refreshments, IEC materials, follow up
support for those screened and found reactive with STDs are provided with
medication, follow up for those found HIV positive, provision of hotline number
which is used by same sex oriented persons to invite counsellors or the Doctor
for specific talks, counselling and guidance.
Support
by Director, Coordinator, Assistant Coordinator, Supervisor, Administrator and
Staff. These have had exposure, training in unconditional positive regard and
client care skills training opportunities. They have also attended most
activities, seen LGBTI as attendants and reassured beneficiaries of continued
support. This exposure has raised staff awareness about same sex orientation
issues.
The
annual workplans with budgeted outlines engendering same sex specific
interventions have been accepted and are fully funded. However, more needs to
be funded in order to realistically address interlinkages between sexuality,
miscegenation, relations, sexual health/rights, HIV/AIDS and STIs/STDs among
same sex practicing populations (both Ugandan and non-Ugandan).
Providing
same sex oriented specific preventives: Provision of lubricants, dental dams
and condoms. This is still minimal but at-least through continued support and
networking with more established same sex health providers supplies are
provided. A more regularised system of provision of consumables, post exposure
prophylaxis to LGBTI who may be exposed to HIV, Septrin prophylaxis, ART and
treatment for ailments will promote decisions for health seeking behaviour.
Need
to regularly and formally pay the staff or at-least provide incentives in form
of cash refunds for transport, medication provided, communication in form of
airtime and provision of professional fees.
Encouraging
continued medical education in courses that keep staff abreast in MSM/WSW/TGs
health, rights and social issues. This will reconcile disparities that spring
from misunderstanding and misdiagnoses through un-friendly constraining
atmospheres for service seekers. Focus is shed on identifying drivers of
inequality through lack of expression of sexuality (spiritual, biological,
physical and mental). Interconnectedness of barriers to the achievement of full
sexual health and rights is realised. Multi vulnerabilities resulting from
denial of sexual expression are checked and full quality service provision
ensured.
To
provide points of change for social and development organisations to include
LGBTI issues in their interventions. Such changes include policy reviews that
mainstream LGBTI programmes.
Strong collaborative ties with other service providers in areas
such as; mental health, sexual health, advocacy, legal, rapid relief, social
development and mainstreaming are crucial in providing LGBTI quality
comprehensive services. Partnerships with 45 existing self-help groups have
been explored. In only 10 of the groups have they been made stronger by
providing facilitation in form of skills development to members and supporting
the groups to make workplans which can then be merged into a single work plan
and supporting the groups during implementation of their activities. These groups
will be registered under MARPI Health action groups.
Research
funding for studies into same sex nature, typology and characteristics in
Uganda will go a long way in informing on emerging and marginalised population
groups. This kind of research informs policy, identifies vulnerabilities, and
explores critical health, rights and STIs/STDs/HIV/AIDS interventions that can
be strengthened. Eventually, mapping of sexuality and rights approaches is done
effectively.
Generating
funds, logistics, making needs assessment and being able to compose them into
proposals, reports and experiential papers. These reports can be presented or
disseminated to national and international fora in order to raise awareness,
logistics and funds.
MARPI
in conjuction with MJAP has enrolled many into HIV care systems, those opting
for nearer to home Health centers providing HIV care have been referred there.
This entry into HIV care system has enabled many LGBTI HIV+ve persons access
services without fear of revelation of their orientation to other health
providers.
Through
Rights Based Approaches and following Articles 21 clause 1, 2, 3, Articles 29
and Articles 36 of the Constitution of the Republic of Uganda there is an
opportunity to provide services indiscriminatively.
Same
sex groups that receive funds to address needs should hold pre-implementation
meeting to generate a needs assessment for which funds can be used to implement
interventions. There should be shared work-plans for target members and within
funded groups. This reduces duplication and provides opportunity to spread
interventions to those in need.
Working
with same sex persons enables exploration of efforts to address specific
activities and frequently asked questions’ themes not covered by mainstream
organisations and these cover: specific LGBTI I.E.C materials production on a
range of thematic topics; HIV-AIDS, safer sex, safer anal sex, correct condom use, positive prevention, good
conduct, black-mail, extortion, corrective rape, paedophilia, drug-use, civic duty/responsibility,
relationships, sodomy, spirituality in same sex life, counselling for parents
of same sex children, same sex sexual debuts in confined communities,
repeat same sex relations, counselling for children in same sex relations,
bisexuality, transgender life, intersex life and sexuality issues, sexual
choices, life choices, vulnerabilities, effects of coming out, effects of
visibility, reproductive health issues, sexuality awareness, insecurities,
domestic violence, gender-based violence, sexual violence, security and Rights
awareness.
Groups
can be entry points for strengthening work with LGBTI Community. Groups make it
cheaper, sustainable and one gets to meet more LGBTI persons. Through this such
indicators like those set by the UNGASS which are relevant to same sex persons
can be set and met ( knowing numbers of infected with HIV, those who know their
status, correct knowledge of HIV transmission and prevention, promotion of
correct consistent condom use, reaching out with HIV Prevention programmes).
Through groups care for HIV +ve LGBTI persons can be possible and this has been
done in 6 groups where members know others within who are HIV+ve and are
provided with social and spiritual encouragement. In 2 groups HIV+ve persons
are adhering to ART regimen. In 3 others, HIV+ve persons are adhering to
Septrin prophylaxis and are regularly refilling their supply with help from
members.
Programmatic
thematic (Point-based) activities among same sex communities sampled include;
HIV-AIDS/STDs awareness, positive prevention, uptake of VCT, increased
screening for STDs, safer sex practices, reduce incidences of abusive
relationships, reduce drug/substance use, improve health seeking behaviour,
legal/security awareness, work ethics, good conduct ethics, community/social
responsibility and involvement skills, rapid relief in case of
eviction/expulsion/rejection, behaviour change communications, increased use of
internet for positive work, establishing and maintaining social safe spaces,
reduction of security, black-mail and extortion incidences, research and
documentation.
6
groups have consistently engaged members in pursuing work ethics, reduced
drug/alcoholic abuse, providing dialogue on life planning skills, encouraging
engagement in IGA’s by members, engage members in pursuing work for cash as
opposed to commercial sex work, catering at various events, performing arts and
community/social responsibility by engaging in social campaigns.
IMMEDIATE
INTERVENTIONS (2009-2013):
OBJECTIVE: Creating and strengthening activities geared at self esteem, dignity, development,
disease prevention, integration in communities, health seeking behaviour and
compliance among LGBTI.
Mitigating the HIV/AIDS
Burden among 60 LGBTI persons; (30
gay males, 10 lesbians and 20 TGs); support
the activities of peer educators, support groups in promoting adherence
practices, establish/strengthen mobile clinic services, including regular
supply of positive prevention kits (Septrin, lubricants, condoms, body lotion,
anti-malarials and multi-vitamins) HIV counselling, treatment, generate
individual adherence plans, establish care plans, ensure linkages to clinical,
psychological, social services and management.
Scaling up LGBTI HIV/AIDS Intervention; supporting 15 groups; support core personnel costs including
management and administrative, facilitate the sexual health work (HIV/STI
prevention, counselling, condom and lubricant distribution, dental dams, cancer
examination, tetanus toxoid immunisation, RH commodities, free anonymous HIV
and STI counselling and testing, and pre/post-exposure prophylaxis, access to
follow-up medical care, antiretroviral treatment, psychosocial support,
treatment and other services and referrals as needed), support the peer
educators’ activities which operate out of identified safe spaces, as well as
through outreach to LGBTI populations in communities.
Strengthening the Capacity of 150 Peer Educators to Prevent New HIV
Infections Through Provision of Basic Counselling Skills; to train, supervise, and support
LGBTI-focused peer educators with continued community-led care and staying
negative practices in Kabalagala, Bwaise, Wandegeya, Mukono, Nateete, Makindye,
Jjinja and Mbale, working to improve skills associated with HIV/AIDS-related
peer counselling, referrals, and social support, and to conduct follow-up
monitoring and evaluation to document the outcome of their work.
HIV/Alcohol/Drug Risk Reduction and Violence/Abuses/Discrimination
reduction; to engage in
strategies that promote; work ethics, incomes among same sex communities,
reduction of drug/substance abuse, use of social safe spaces for talent shows
and exhibitions, reward/recognition for good work, awareness of legal and
security issues, exploration of sexual and social networks and promotion of
life planning skills and good conduct for LGBTI persons.
Engaging same sex communities in point-based activities to gain
will of larger community; engage
members in pursuing work ethics, reduced drug/alcoholic abuse, providing
dialogue on life planning skills, encouraging engagement in IGA’s by members,
engage members in pursuing work for cash as opposed to commercial sex work,
catering at various events, performing arts and community/social responsibility
by engaging in social welfare campaigns, creating dialogue opportunities on
same sex issues and making courtesy visits to nearest political, cultural and
social leaders.
Qualitative Assessment of HIV Risk Behaviours Among LGBTI; conduct
in-depth qualitative interviews with 100 LGBTI persons and 10 Key informants in
Uganda, documenting social/sexual networks, visibility-related risks,
HIV-related risks, risk factors, and programme needs. The findings will be used
to develop programme recommendations for future interventions and informed
engagement of political, cultural and religious leaders in reducing hate
campaigns/sentiments/oppression and giving unconditional positive regard to
same sex persons in the fight against HIV-AIDS/STDs.
Safer life Social
marketing drives addressing same sex needs; Packaging positive
prevention kits (Septrin, lubricants, condoms, skin lotion and IEC literature),
MSM wellness kits (IEC literature, condoms, lubricants), WSW wellness kits (IEC
literature/promotionals, Dental dams, lubricants, detergents, sex toys,
lotions), TGs wellness kits (IEC literature/promotionals, lubricants, dental
dams) and bisexual wellness kits (IEC literature, lubricants, condoms, dental
dams)
CONCLUSION:
Involving
formed viable groups in addressing community needs (such as community clean up
campaigns, encouraging dialogue over certain behaviours, participatory
assessment, cleaning school compounds, thematic interests, pursuing local
interventions, HIV interventions, sanitation campaigns, good conduct and drama
activities) will be more sustainable, provide platforms for legal and social
protection, instils valued ethics and is durable. These groups which should
meet once a month should be provided with logistical support (US $ 50) to cover
venue, rehearsals, costumes and administrative costs for at least the first
year, eventually after consolidation these groups will be encouraged to involve
hetero-normative persons and take on community responsibilities and
requirements cascading into nationally accepted funding inclusion criteria.
Activities surrounding good conduct of the beneficiaries should involve (civic
responsibility, nuisance-avoidance, good dress codes, abstaining from alcoholic
drinks, avoiding recruiting minors, avoid engaging in sex with
minors-Paedophile- and other anti-social manners). This will change hetero-normative
community and policy-makers perception about same sex oriented communities.
Issues that have always eluded policy makers about same sex communities will
now be revealed and addressed. With more funding more people will be
reached. Eventually the goal of various
policies such as the NSP-to achieve universal access targets for HIV
prevention, care and treatment and social support by 2012 will be realised.
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